CDC to Study Morgellons

computersareevil

Wed Jul 26 07:09:28 -0700 2006

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I read through the advocate and debunker sites a few months ago since it sounded so strange and interesting. I was taken aback by the common reaction of the medical community to just dismiss the symptoms. Had I not experienced the same dismissal for something so common as a collapsed disk in my neck, I would not have believed the doctors could be so callous.  Unfortunately, doctors are human, and are not (usually) scientists. So anything they see that doesn't fit their prejudices is immediately dimissed as not medical in nature.
At least now some real scientific method is being applied to this malady. And phycological or not, maybe these folks can get some real relief.

--
"Curiosity was framed; ignorance killed the cat." -- Author unknown

or CDC NOT to Study Morgellons

rubycodez

Wed Jul 26 09:52:02 -0700 2006

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actually, I can't find any evidence the CDC or anyone else of credibility is looking into this.  Going to a real doctor with textile or any other kind of  fibres in a wound would result in immediate wound cleaning, so I'm thinking this a hoax, not a case of callous doctors.

Just as gonig to a good doctor with a collapsed disk or neck pain would not result in dissmisal.  Sounds like you went to bad ones.

CDC to Study Morgellons

Deborah Zandi

Thu Jul 10 09:35:44 -0700 2008

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I recently contracted all the symptoms of Morgellon's, I had a vacation home in the Florida gulf region, and believe this unknown pathogen comes from this area and various other areas around bodies of salt water, oceans, etc.

I called the CDC today, and listened to what they are doing as per their pre-recorded public information line at 1-800-311-3435, Ext. 6, for the group of people in Oakland, CA and am very concerned.  From the information I have gathered all throughout the various stages of this disease - and by listening to the tests that the CDC are performing to make a determination - they will NOT find the pathogen.

"I believe I know what the pathogen is" - I left the CDC this message today, 7/10/08, and whether anyone over there responds, well....  I believe that they are somewhat concerned however, this could be a matter of funding, that possibly, the Government is not allowing the CDC to study this on a larger spectrum to find what IS actually going on here.

I am in Atlanta, GA, I have been to 7 doctors and three Emergency Rooms, and put on a pill for Tourette's Syndrome called Orap - to "shut me up" and make me quit complaining about my "imaginary" symptoms, a heavy "downer" that keeps the Morgellon patient from being able to doctor themselves, function, make doctor's appointments or even drive.  I do NOT have Tourette's Syndrome!

Every doctor I have seen is assuming that the patient is delusionary and or psychotic.  When you read about "delusionary parasitosis" the first step the doctors are supposed to take - is to determine if it is a REAL infestation or NOT.  However, every doctor that I have seen, has not looked at a single sore - taken any blood, as requested, nor looked at any body part with any detail.   I have been trying since April 29, to get some help.

Dogs are treated better than this in our country!  This is a shame to the Medical Professionals - that at this time there are a reported 18,000 people with this, and the CDC is not taking a count, this number could be doubled or tripled? - that are all having the same symptoms.  And all of them are considered "delusionary", how can 18,000 people all be having the same delusion? 

If anyone is out there suffering, like I am - I have good information on how to keep this under control until we can make "them" realize - what this is.  You can email me homebizs@aol.com.

CDC to Study Morgellons

Deborah Finklestein

Wed Nov 19 10:45:19 -0800 2008

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Hi,

I am sorry for your suffering. The medical community reacton to all this has been pathetic and unconscionable. The CDC and some other studies are just trying to figure out what the heck it is at best, they have not even begun to get a clue about a cure. Those of us afflicted can not wait, so we must help each other.

After a year and a half of intense suffering and researching the efforts of others, I feel that I am on the road to complete irradtication. Here is what has helped me.

1. Metronidazole topical cream (also known as Flagyl). I discovered this by accident, believing it might be Demodex mites, which have similiar symptons. Not a cure per se, but definitely helped heal during the open sore stage.

2. Collidal silver. You have probably seen the ConnieM video. If not you may want to google it. Avoid silver proptein or ionic silver (they can cause a side effect of turning blue! only 10 people in the US have it, but if it happens to you it's 100%, right)... you need a high grade true colloidal silver .... the darker yellow in color the better. Nutrasilver company is recommended. Research on your own so you know for yourself. Prices can vary.

3. I also use a water machine that treats water by opening the angle of the Hydrgen to 114 degrees. I have used this for a month, with unbelievable results. The biting and itching has stopped. I am just trying to clear up residual skin problems now. Again, please research for yourself, I have no stake in any of these companies. Just reporting what is working for me. The basis for this inventor is to get more oxegen into the system, as this angle in hydrogen (H2o) has been collasping over time. You can read about this and judge for yourself www.johnellis.com. This machine is pricey, he is very nice and will work with you. To me it has been worth it's weight in gold.

4. The only other thing I have read about with definite results has been ultra-violoet therapy. Because the incredible trama to my skin caused a secondary condition called Vitiligo (lose of skin pigmentation), my dermatologist has agreed to these treatments that I am about to begin. Because I have no inusrance the drug company (there is a drug you take along with the treatments) will supply it for free. The sessions then will only be $5.00 each. If you are in this posision without insurance, press the doctor to pursue the free medication for you.

I did not have the blue fibers appearing externally that everyone spoke of (my friends would call evrytime there was something on TV about it and say "this is what you have!"). I always dismissed it because I did not see the fibers. What I did have in the center of every sore was a tiny little sesamee like kernel. When I removed them, hte sores healed faster. After researching more, I discoverd that this is one of the more obsure symptoms others were experiencing. The final test for me was when I got a hand held black light and left it against my arm for a few minutes. The littel white spots under the floresence began to unfurl into little thread like worms of varying lengths. They seem to be drawn out and attrached to this light. If anyone you know is doubting you, show them this test!

It is right off the Xfiles and rather unnerving ... but pretty convincing as well. Possibly not so far fetched. Lets face it, many governments have been doing bio-chemical warefare experiments for years. That is just a fact. Who knows what is out there, or what is gone wrong. You never heard of any of this stuff just a few decades back.

Most importantly, do not give up hope. You are not delusional, and there are always answers. The human spirit is astounding. Tap deeply into your courage, rely on the strength of your faith, and know you are not alone in this struggle.

All the best to you

CDC to Study Morgellons

John W

Wed Jul 26 07:51:50 -0700 2006

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Hmm, note that the fibers are incredibly fluorescent... imaginge what a patient would look like under a strong black light...

On  a more serious note, knowing more about this disease could be incredibly useful.  Once a cure is found, perhaps the disease could be somehow harnessed to produce thread in factories, outside of human hosts.  Might revolutionize the textile industry, or produce lighter forms of rope... provided it has decent tensile strength.

However, a cure is obviously a higher priority - I can't imagine having those symptoms.

CDC to Study Morgellons

Charles E Hill

Wed Jul 26 08:13:34 -0700 2006

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I've seen reports that this is just a clever marketing ploy for the movie "A Scanner Darkly".  Go to the CDC web page (http://www.cdc.gov/) and do a search of their site for "morgellons" and NOTHING comes up.

Is there anything out there NOT directly related to that guy at OSU?

 Charles

CDC to Study Morgellons

AB3A

Wed Jul 26 09:20:17 -0700 2006

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Good grief. If this is just marketing, expect a backlash.  This "viral marketing" and "creating a buzz" can lead to some bizarre things.

In any case, I see at least 7 independent listings in Google News.  I also found something called the Morgellons Research Foundation which  seems to have a very limited look to it.  They claim articles going back to 2004.  If this is buzz marketing, it must be deep, long term stuff.  It may also be an elaborate hoax.  I'm beginning to notice that the news reporters report on members of the previously listed "Research Foundation."

 

CDC to Study Morgellons

mjfrazer

Wed Jul 26 11:19:10 -0700 2006

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Heh, I wasted an evening of insomnia looking this up some time ago.

I could not find a single reputable source on it.  Many people who are addicted to amphetemines end up experiencing symptoms like this.  Once they are off the meth for some time, the systems go away.

Sleep deprived people on meth have internet access too and will search far and wide on google for anything matching their symptoms...

Turns out a lot of meth users are computer users and know how to throw up a few web sites about their "disease".

CDC to Study Morgellons

Shiloh

Sat Jul 29 13:08:02 -0700 2006

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I certainly understand any skeptisism regarding the questioning whether Morgellons is true illness. I will also say that I am an educated person with a master degree, have run several marathons and have never been addicted to meth or the like. I have this didease. It is the most bizarre and unbelievable illness I could possibly imagine, and I would also have a hard time believing anyone who told me the stories that I could tell. I don't tell the stories to anyone, not even my husband. Yes, he knows a great deal but sometimes it is so strange I don't even begin to share a "latest" issue. I am hoping the day will soon come where I can get rid of this,  help people like myself, and like you. We can't know what we don't know.

CDC to Study Morgellons

Joe

Mon Dec 11 21:12:58 -0800 2006

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1. Hey I think you are the one on meth! up late at night responding to something that has no concern to you but to be a  jerk.  There are hundreds of people that have the same exact symptoms but have never met. What do you think that we all got together and made this shit up? Keep tweeking moran. Itried to kill myself over this shit and I am a mechanical engineer. Do you really think I have nothing better to do " If I had insomnia but to rag on people in need of treatment?" Get a life and go back to pumping your gas for min. wage. punk !

CDC to Study Morgellons

Posterdamus

Sat Feb 02 21:18:49 -0800 2008

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...yeah, well..  anyway, the CDC is investigating now; you can find more info AT THE CDC WEBSITE FOR CRYIN OUT LOUD.

CDC to Study Morgellons

Posterdamus

Sat Feb 02 21:22:15 -0800 2008

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The suffering that many people associate with this condition is best addressed by a careful, objective scientific analysis. Considering the complexity of this condition, we believe that a measured and thorough approach offers the best chance for finding useful answers.

To learn more about this condition, CDC is conducting an epidemiologic investigation. CDC has awarded a contract to Kaiser Permanente's Northern California Division of Research to assist CDC in the investigation of this condition. The study is being designed and led by CDC.

The primary goals of the investigation are to help us learn more about who may be affected with this condition, the symptoms they experience, and to generate hypotheses about factors that may contribute to it. The investigation will involve: determining the clinical and epidemiologic features of this condition; assessing the histopathology of skin biopsies from affected patients; characterizing foreign material such as fibers or threads obtained from persons with the condition; and estimating rates of illness among the study population.

 

 

FROM THE FREAKING CDC WEBSITE

The Morgollon have landed

sudogeek

Wed Jul 26 17:03:59 -0700 2006

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South Texas has always been, for some strange reason, a hotbed of bizarre pseudo-medical conditions.  There is an entire town (Wimberly, TX) to the west of Austin where a large number of such patients live. There is an entire sub-culture involved in this stuff and apparently by word of mouth or through support groups, the area has been a magnet for such diagnoses.  During the years I was on the faculty at the UT medical school in San Antonio, I saw many patients with the trendy diagnoses of the time, including so-called "20th century allergy."  These patients described chronic fatigue plus poor concentration and a constellation of somatic symptoms including evanescent rashes and migratory pains as a result of "multiple chemical sensitivities."  Paints, synthetic anything, food chemicals, anything that was named with a combination of letters and numbers, all were culprits.  Many victims lived in houses in which they had coated the interior walls with aluminum foil and only ventured out swaddled in cotton clothes and wraps from head to toe, like some bizarre burkha.

Many of these patients had diagnosable psychiatric disorders and none had any definable medical diagnosis (at least from the point of this mainstream allopathic Western physician).  As far as I know, they are still up there, holed up in their houses.  The same syndrome has been present for as long as there are medical texts: neurasthenia, chronic Epstein-Barr syndrome, "chronic Lyme Disease," chronic fatigue syndrome, and others.  The names change, but any practicing physician can recognize these patients. Further, there are many such patients diagnosed with other recognized syndromes, such as lupus for example, that do not have that disease but have been diagnosed inappropriately, both through carelessness on the MD as well as the patent's seeking a diagnosis.

The "fibers" are an interesting feature of theis condition.  I cannot find it now, but there was a link on a Morgollon's thread on Kuro5hin to a study where EM and mass spectrometry of these fibers showed they were either fabric or skin, drawn into fibers by rubbing, itching, or other repetitive action.

The Morgollon have landed

Joe

Mon Dec 11 21:22:18 -0800 2006

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Listen, This is not Lyme or any of the other diseases. This (taken from somebody who has it) disease is the devil. People joke about it further up the page of being able to be seen in a black light. Well guess what? At my work People are always talking behind my back about thinking I'm some weirdo because I'm basically glowing. If we aren't going through enough. I mean this is painfull and lets not forget annoying. So if you people that are on here to ridicule us who have it don't have anything better to do than to stay up on your free time and tormenting the tormented, well then I would probably pick morgellons over what you have. Shallow hearted nobody. Thank you : )

CDC to Study Morgellons

jeff jones

Wed Jan 17 15:28:24 -0800 2007

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I am concerned about researchers putting so much focus on the fibers. I have suffered with morgellons for more than 4 years and can tell you there are  fibers. I have yet to see any like OSU has photographed. The fiber comes out of my skin in huge amounts all over my body, especially around the eyes,nose, ears, and mouth.The color is usually black, yellow or white. There is a sticky substance with millions of glitter-sand like particles all over my body. There is a parasite present and I have learned how to control legions, but I have significant scarring promently on my face. I don,t seek treatment any longer because I got tired of being humilated. L-lysine helps so that makes me think there is a viral component. Antibiotics help but quit working after a couple of weeks. Lindane just makes you sick. I believe I am a reasonable person, but Morgellons is real even if some people are exploiting it. E-mail me if you have any questions, the only way it can be proven is by legitimate research.